Waiting on Baby Hannah & Coping with Trisomy 18 Diagnosis

For the past two weeks now we've been waiting on the birth of my 3rd niece. Waiting. Waiting. And waiting. Since the first mad dash to the hospital, which ended up being a false run, my sister has been traveling back and forth to see if she should keep waiting or induce. Meanwhile, the family has been on constant standby.

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Finally! They induced my sister and the count down to labor and delivery started. Things became even more crazy. Another day of dashing around and anxiously waiting. Then one morning within 1 hour my sister was ready! A few hours later my niece was here. Finally!

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Once my sister was settled in, I joined the other family members in my sisters room. We were all happy and excited my sister birth went well. But we were also worried since my niece was born with Trisomy 18, a condition also known as Edwards syndrome, which is a chromosomal defect.

Babies diagnosed with this defect are many times still born or die soon as after delivery. The doctors told my sister to abort but she decided to carry to full term no matter the odds. The family wanted to be there for my sister for comfort in case....

As I sat there many different doctors and specialist came in and out my sisters room. They all spoke in serious language, careful not to give my sister to much hope about anything. It was really sad and frustrating to see and hear. My niece needed to accomplish so many milestone within the next few hours but I felt like these doctors didn't think she would. My sister for her part, very calmly took things in.

During one of the breaks between doctor visits, I asked my sister how she feels. She said she had a while to prepared for the worse. Right now she'll take things day by day. Her strength is amazing

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After a few hours the family was allowed to visit my niece in NICU. We took turns since only 1 person is allowed with a parent at a time. I allowed my mom and younger sister to go first while I baby sat my son and other niece in the play area. In truth I needed a few extra minutes to prepare myself. I have memories of being with my son in NICU and they are not happy ones.

As I watch my son play with his cousin, I am grateful for many things. One of them being that my sister was the one sitting with me in support back then. This time it's my turn to sit with her in support.

When my turn came to go into NICU, I took a deep breathe, covered myself in energy radiating love, welcome and hope and walked over to see my niece. As I gently touched her I was so thankfully I had the chance. A chance to see her open her eyes. A chance to watch and hear my sister tell her she loved her. That's all any mother and a child wants. A chance.

My sister started a blog about her motherhood journey and coping with having a child diagnosed with Trisomy 18 - http://footprintsofhannah.blogspot.com/

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8 comments:

  1. Anjanette AlexanderMay 18, 2012 at 11:42 AM

    I'm sorry to here what your sister is going through! She is a very strong woman and its great she has her families support! I'm praying for her and I hope she gets to take her home and enjoy raising her!

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  2. Congratulations! Not only were you there for your sister, you were there for Hannah. This sentence "...covered myself in energy radiating love, welcome and hope and walked over to see my niece." speaks volumes about what a good heart you have. I will keep your family in my thoughts.

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  3. There is nothing like the strong bond between sisters. I can feel the love expressed in this post. You are strong women and so is Baby Hannah! Congratulations to your family!

    Hugs and Mocha,
    Stesha

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  4. Sending love, the peace passes all understanding and prayers for healing.

    I love the hope in your hearts.

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  5. Congratulations on the birth of your niece and I hope she pulls though okay...thinking positive thoughts!

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  6. Onica, I'm so glad you could be there for your sister!! She sounds like an amazingly strong woman.

    I will be thinking of her and your niece and I hope things go well!

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  7. Congratulations again on the birth of your niece. I"m sending both you and your sister lots of love and prayers.

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  8. Thanks everyone for their comments of encouragement. We're thankful for everyday extra

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